The proceeds from the sale of the video courses will be donated to the p63 E.E.C. Syndrome International association.
Found in 2009 in Padua by a group of mother and women, the association p63 Sindrome E.E.C. International aims to support people affected by rare diseases (particularly those with mutation in the p63 gene). Its main objectives are to bring people together, provide assistance at all stages of a patient’s life, and promote social and healthcare inclusion.
The p63 Syndrome E.E.C International Association is a social promotion organisation dedicated to raising awareness among the public and responding to the needs of patients with rare diseases.
Through offices in the Veneto region and beyond, it provides training, information, socialisation and support for individuals and families affected by rare diseases, delivered by trained staff.
It also works to raise awareness, collect funds and donations for scientific research, and follow guidelines provided by medical professional and researchers, addressing the delicate yet crucial field of scientific research, which is increasingly recognised as a social priority.
Since 2020, the association’s role in the wider network has enabled the development of regional, national and international projects.